While research is necessary (which is where the bulk of the original ice bucket challenge money went) - my heart goes out to the people who are directly in need RIGHT NOW. People who can't afford a ramp, can't afford a wheelchair or a van, who can't afford to hire a home health care worker.
The ALS Guardian Angels is one of the grassroots organizations who does offer immediate support in the form of monetary grants, equipment, support in finding assistance.
Unfortunately, the man behind ALS Guardian Angels unexpectedly decided to shut down his organization at that time. ALS is a cruel, ugly disease. There is no cure, no treatment. My heart breaks a little more every single day with Luther. I can only imagine trying to reach out and help so many people with so few resources.
Click here to go to his site and donate, if you can:
Here is his story. I ask you to take a moment to read it.
A SLAP IN THE FACE